The greed of the pharmaceutical industry in the United States is almost unbelievable. Even within the hallmark general greed of America’s illness profit system, it is notable. If I wrote it in a novel it would be implausible. I try to imagine the executives of these drug companies sitting at a conference table justifying acts like the one described in this report, and I cannot. Obviously, they have no moral integrity, but how does one live like that? I just don’t know.
When Will Schuller was an 18-year-old senior in high school in Overland Park, Kansas, something puzzling was happening. He was “big into running at the time” and seemingly in good health, but his mile time kept increasing.
“I was getting much slower and slower times,” Will, who is a now a senior at the University of Tulsa studying mechanical engineering, told NBC News on Thursday. Eventually, he said, it got the point that within weeks he “couldn’t run even half the distance.”
From there, it only got worse. Will struggled to walk from the school parking lot to his classes, and he couldn’t exercise.
“Everyone knew I was this fit guy, and in just a matter of a month you see me struggling to walk from one side of the hallway to the other,” he said. “My sister would have to piggyback me up the stairs.” At that point, Will’s parents had to pull him out of school.
It took about six weeks for a neurologist to figure out what was going on. Right around Christmas 2014, Will was diagnosed with Lambert-Eaton Myasthenic Syndrome (LEMS), a rare neuromuscular disorder.